Baby Care  
Positive Touch Specialist
Neonatal Nurse
 
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Designed by:Liam Nolan
© Cherry Bond 2007
 
 
 

 
 
Parent's experiences of Positive Touch

SAMEERA’S STORY
Written by her parents Rehana and Kamran

Sameera was born in 2003 10 weeks premature at 30 weeks gestation, with a birth weight of 900 grams. 

Unfortunately, her mother had a complicated pregnancy and Sameera was also born with multiple medical conditions and defects which have required a number of surgeries, medical interventions, and regular supervision.

Sameera was battling for her life from the moment of her birth and for many months thereafter. As her parents, we witnessed her amazing fight for life at first hand; she exhibited many qualities including fight, determination, and self-preservation and she has continued to use those essential survival skills to this day.

 

Baby Sameera

We believe whole-heartedly that the wide range of care given at the Winnicott Baby Unit, (St. Mary’s Hospital, Paddington) including the provision of Positive Touch, Developmental Care, and parental support intervened, by the grace of God, to develop her into a quick-witted, balanced, and engaging child which has helped us all cope with the demands of her ongoing medical care.

Baby Sameera 2

Positive Touch and the developmental team played a vital role in Sameera’s care and development and also with us, in developing our relationship with our daughter. It also helped us in employing appropriate coping strategies during some harrowing times in her early life.

As time has moved on, some of the key techniques learnt during that time have continued to help us with Sameera’s upbringing and we have become enthusiastic advocates of the principles to the extent that we wish all parents had the opportunity to learn what we’ve learnt (without the medical issues of course) in order to best influence their children during those crucial formative months and years.

We are adamant that whilst the normal neonatal nurses on the unit do an excellent job, their focus is on their schedules and so performing a baby’s ‘cares’ speedily is the driving objective, e.g. nappy change, feeding, bloods, etc., and execution of this duty is the baseline support that should be expected of any ‘leading’ medical facility.

The role of Positive Touch surpasses this baseline by employing a more rounded care and health ethos through the teaching of techniques such as ‘adapted infant massage’, ‘still holding’, ‘nurturing touch’ making it possible to communicate even to babies…without words!

Three particular highlights that we remember fondly are:

♥ playing with her to establish fun moments, e.g. linking the experience of a hug with the words “I love the Sameera, I love the whole world”

♥ being able to relax her through massage when she showed discomfort

♥ letting her lie on my chest outside the incubator (without setting off her monitors!)

Baby Sameera with Father


What we got from the Positive Touch programme


Insights into ‘reading’ the behaviour and needs of our child – when applying the techniques/ stimulus (e.g. for massage) we leant to forecast Sameera’s responses and this experience has lead us to a good understanding of her baby cues. When responses differed from her regular patterns, other issues were detected and we could act on that quickly.

Developing positive messaging and emotional development of our child – sharing pleasurable moments and a regular routine (e.g. using kangaroo care) to establish joy, security, and trust counteracted the negative touch she experienced i.e. when taking bloods, samples, etc

Relationship and role development – premature birth can make it difficult for parents to bond with their children especially when the baby goes straight into an incubator and/or the mother may be ill as well. However we were empowered into believing we had a role to play, that we could communicate and have a special type of contact with our child (e.g. using still holding, asking and getting permission from the baby), and that were definitely some areas that we could control in amidst of all the mayhem

All of the above helped us in creating a virtuous circle; reducing the stress of our baby and us, which in turn, helped us to communicate openly and work co-operatively with the medical staff.

Sameera and Parents Rehana and Kamran


 

 

 

   
All donations are welcome as they help keep the cost of the course as low as possible.